HLA-B27 positive
March 13th, 2007. Posted 21:14

With small steps I am learning more and more about my health situation. Last week the first blood tests came back and as the doctors already expected, I have tested positive on HLA-B27. That by itself ain’t a problem, but together with my eye problem (acute anterior uveitis) the presence of HLA-B27 is often associated with an autoimmune disorder. In my case this means it very likely I have a rheumatoid arthritis related problem.

The eye doctor has referred me now to a rheumatologist for further investigation. So it will probably take some extra time before they can draw a conclusion. For now they expect my problem to be related to Bechterew’s disease or with a more funky name: Ankylosing spondylitis; more or less a rheumatic spinal cord problem. But again, it will most likely go with small steps before we get to that conclusion. First I have to wait and see what comes out of the visit to the rheumatologist.

Some good news as well! As my eye inflammation is finally starting to improve! For 2 weeks I had to put one drop of the anti-inflammation medication in my eye each hour, even though the enclosed medication guidelines stated a maximum of 4 drops a day!!! :-) But even being a factor 4 over the maximum amount wasn’t a problem according to my eye doctors. Since this Monday I am allowed to reduce the medication to 8 drops a day! OK, still quite a lot, but I haven’t had to much to cheer about the last weeks, so even the smallest improvement is welcomed with lots of cheers in this camp these days!! :-)

5 Responses to “HLA-B27 positive“
Sal says
March 13th, 2007 at 22:44

Who are “they”?

“For now THEY expect my problem to be related to Bechterew’s disease …”

I thought all that talk of Bechterew’s disease was just you self-diagnosing and speculating. Have the doctors also said that they think it’s Bechterew’s?

Bert says
March 14th, 2007 at 09:14

Yes, “they” are the doctors! Two of my eye doctors (I almost see a different one on every visit to the hospital) mentioned Bechterew’s disease as soon as they suspected me being HLA-B27 positive.

So that, supported with my healthy self-diagnoses, makes it point in that direction. But again, nothing sure yet, the future will tell!

Eva says
March 23rd, 2007 at 13:55

I am very sorry to hear that you have been sick. Hope you are feeling better really soon.

Take care

billy says
December 1st, 2007 at 21:08

Did you find a cause for your iritis. i have had it for about 2 1/2 months now and little or no improvement. Ipassed all the tests and e-rays with the exception of the hla b27.

Rahaman says
January 24th, 2008 at 05:31

Be careful brother. HLA B-27 is not a good news. I also have HLA B-27 positive and developed mild cervical Spondylitis. I have been suffering from stiffness in my neck for almost four years. It is sometimes very painful. In Feb’05 I developed Uvities in my left eye and doctors put my on steroidal drugs for a long time. Because of these steroids I also developed Glaucoma and underwent surgery. The surgery made my left eye vision more worst and had to undergo another surgery for Hipotonous Machulopathy. Now my vision is less than 50%. My suggestion is consult the eye best doctors and rheumatologist even if they are far from your place. Eye sight is very precious. Take Care. Bye.

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